Monday, June 6, 2011

Finding Peace

I crave peace.  I want peace in my home, I want to drive peacefully, work peacefully, be at peace in social situations, and to be at peace with myself. 

Over the past couple of weeks, as the date for my transplant approaches, I have found myself in a state of panic.  I was worried about so many things...so many "what if" scenarios.  It was driving me crazy.  I'd think about the future and become so scared that I'd actually start to cry.  I think I was driving my husband insane.  He would hold me and tell me that everything was going to be okay.  He's been my rock.

Yesterday a lot of people I know--and many I don't know--fasted and prayed that my lab test would come back with a result that will finally allow me to have the transplant.  My sister Michelle called me and told me that just about everyone in her ward was fasting for us.  She told me that it was one of the first times in her life that she actually knew what it felt like to "feel" people praying for us.  I'm so grateful.

I felt at peace all day yesterday.  Going without food and water for a day is difficult for anyone, but we did it.  Ian and Courtnie joined us, too.  I hope that they learned that they can do hard things, especially when you are doing them for someone you love.

This morning I woke up and felt so good.  "Peace" is hardly the word to describe it, but it's the best word I have.  I had this overwhelming feeling that everything is going to be okay--come what may.  My worries are gone, and I have turned my worries over to the Lord.  As I laid in bed thinking of the future, John 14:27 came to my mind:

"Peace I leave with you, my peace I give unto you:
not as the world giveth, give I unto you.
Let not your heart be troubled, neither let it be afraid."

I felt my Saviors love for me so strongly.  I know that He knows my troubles, and I know that He has experienced the pain that I am going through--both physically and emotionally.  I am so grateful that He has taken me by the hand and is guiding me through this time.  I hope that I can live worthy of His love. 

Saturday, June 4, 2011

I Wish...


My cousin Eric passed away yesterday.  He was only nine months older than me.  He died suffering from severe liver and kidney failure.  I can't imagine...

Eric and I were kids together.  I have some fun photos of he and I playing in the back yard at my aunt's house in Idaho Falls.  Some of them wouldn't be appropriate to show to anyone! :)  I guess they didn't make swimming suits for babies back then! 

Eric was always the cool cousin.  His mom was (and still is) very beautiful and stylish, and Eric was always dressed in the coolest clothes.  He had a very funny and outgoing personality and ALWAYS had a goofy grin on his face.

When I broke up with my boyfriend my junior year of high school, Eric came to Utah and took me to our Homecoming dance.  He was a good sport about it, and it was really fun...

I've spent the last little while thinking about the last time I saw him, and I think it was that date.  He hasn't been to either of our grandparent's funerals and I've wondered why. 

It turns out that he's been battling some pretty vicious demons.  I had no idea.  I wish I had known--not that I could have done much about it, but so that he could have had someone else praying for his recovery.  I wish I knew what set him on this course of self-destruction, and I wish I could have been more helpful.  I love him, and miss him as a part of my life.

This event has got me thinking a lot about choices.  If you've read my blog at all, you know I'm a big proponent of choice in every aspect of life.  Each of us comes to earth with a certain amount of potential, and it's up to us how we choose to develop it.  What sets people off down the wrong path?  Is it friends?  Outside influences?  Or do we have complete control over every aspect of our life? 

I believe 100% in the concept of agency--that every choice we make in life has a consequence, be it good or bad.  I wish Eric had made better choices.  I hope that he's making them now and has the opportunity to right the wrongs in his earthly life. I have to believe that we all get second chances.

An Email to Gram

Gram,

Gordon asked me to email you with exactly what my issues are regarding my (hopeful) upcoming transplant. I'm very worried about it, and am so grateful for those who would like to fast on my behalf tomorrow. It means a lot to me, and I know that our Heavenly Father will hear our prayers.

As most of you know, I had cancer as a child. This was during the late 1970s before they started testing blood more carefully for viruses. During the course of my treatments, I had a lot of blood transfusions, and I'm fairly certain that's where I picked up the lovely hepatitis B virus. I didn't know I had this until I started dialysis when my kidneys shut down in December of 2009.

When I started my evaluations for a kidney transplant at Mayo Clinic, I met with a hepatologist (liver doctor), who told me that I could take medications to suppress the virus so that it would be undetectable. I did this for a few months, and was finally cleared for transplant last November. I thought that once I was cleared, I wouldn't have to take the meds anymore, so I stopped.

Since then, I've had other complications, but was cleared again for transplant in February. They tested my hepB level again at that time and the viral count was higher than it had ever been. This set me back yet again, as if I were to have the transplant with my viral count at a detectable level, the anti-rejection drugs I'll have to take for the rest of my life would have let the virus multiply and destroy my liver. I've been on the anti-viral meds again since February, and while the count is trending downward, it still isn't good enough. It started at almost a million in February, was at 500,000 in March, 1800 in April, and was at 1000 on May 10. The hepatologist wants it at ZERO before he'll clear me for transplant.

My transplant is currently scheduled for June 14, and I will have my count tested again on June 7. If I want to go back to work teaching band at the end of July, I absolutely HAVE to have the transplant done on the 14th. I've been told by my district office, that if I don't have the surgery in June, they will find someone else to fill my position. I love teaching, and so desperately want to get back to work! I also want to feel good and be a better wife and mother. Of equal importance to me is to have this done so that my sister (who is my donor) can get on with her life...we've been in limbo for so long!

Anyway--a long explanation as to why we're fasting tomorrow. I have had the power of fasting and prayer work in my life before, and I know it can work again. I need the lab test on Tuesday to come back with a positive result so that this transplant can finally happen.

Love you all. Thanks so much for all of your prayers, faith and love.

Amie

Thursday, June 2, 2011

Soul Surfer

While Ian is gone on our stake's pioneer trek, Courtnie and I have been enjoying some "girl time."  Yesterday we went to see the movie "Soul Surfer," a movie she's been wanting to see for a while. 

The movie had a lot of references to religion and Jesus Christ, which made for a great discussion with Courtnie afterwards.  One of the Biblical references that was used was Philippians 4:13, which says, "I can do all things through Christ which strengtheneth me."

The girl in the movie was a championship surfer who was training for the national championships when she was attacked by a shark and had her arm amputated at the shoulder.  She had to learn to do everything over again, and felt sorry for herself at times.  Her father (also a surfer) kept telling her that she shouldn't give up, and quoted the above scripture.

A little while after her accident, her church youth group went to Thailand right after the tsunami in 2004.  This helped her to put her trial into perspective as she saw the devastation around her. 

I have 12 days left until my scheduled transplant.  I'm still not where I need to be with my viral level, and I'm so scared that this will mean another postponement.  In February, my count was near one million, a month later it was cut in half, at the beginning of May it was at 1800, and on May 20 it was at 1000.  It needs to be at zero for the doctor to clear me for surgery.  I'm having another lab drawn on June 7, and if it's close we can draw it again on May 10, but that's it.

If I don't have the surgery on June 14, I won't be recovered in time to start school in August.  The HR director has informed me that if I can't start the school year, he's going to have to find someone else for my position.  This devastated me.  Other than feeling better, the thing I'm most excited about is being able to go back to work.  I miss it so much. 

Putting things into perspective--will it be the end of the world if I don't work next year?  Will I be able to find fulfillment elsewhere?  Would I be able to come back to what I love?

Are there people suffering more than I am?

Am I worrying needlessly?

I'm trying so hard to have faith that things will turn out as I'd like them to, but I've wanted that since last November.  For some reason, things just don't always work out that way. 

I know that Heavenly Father knows the deepest desires of my heart.  I know that He hears my prayers and my pleadings.  I know that He hears the prayers of my family and friends.  It is my continued prayer that He will allow this transplant to go through so that I can get back to my life.

Tuesday, May 10, 2011

Mommy!

There was a time in my life when I wondered if the picture above would ever be taken. 

I still remember where I was when my mom told me that I wouldn't be able to bear children.  She said that the oncologists told her that if I had the radiation treatments I needed to save my life, my reproductive system would be damaged or even destroyed.  My parents were heartbroken.  As members of the LDS church, we believe very strongly in families and that they are forever.  We also believe that one of our main responsibilities in this life is to bear children and create families.  We are told that we would find joy and happiness in our posterity.

Throughout my childhood and teenage years, I didn't tell anyone but my closest friends that I even had cancer as a child.  I still felt that stigma that plagued me when I was undergoing treatments.  Many people didn't understand then what cancer was, and some even thought it was contagious.  I was teased and made fun of, and had few friends.

I was always worried that I would start dating a man and fall in love.  He'd ask me to marry him and I'd tell him that we wouldn't be able to have children of our own.  He'd back away and tell me that it was too important, and he'd break up with me.  This was the scenario I'd created in my head...even when I started dating Gordon.  For a while, I even convinced myself that I didn't want children.

Early on, Gordon told me he was adopted.  I hoped that he would be open to my situation and would still love me when I told him.  A few days before he proposed, I told him we'd need to adopt our future children, we both cried and he was so supportive.  I knew then that I had found the person Heavenly Father had sent to me.  He was actually excited about adopting...imagine that!  I felt a sense of peace and gratitude that I hadn't felt since learning of my infertility.

We waited six years for Ian, and another four and a half for Courtnie.  I tell them all of the time that they were worth the wait.  I am grateful every single day for their unselfish birth mothers.  They knew that they weren't ready to have a child yet, and thought of their unborn child first.  They wanted their child to have a mother and a father, to be brought up in the gospel, and be sealed to an eternal family.  I know that they think sometimes that others will think they took the "easy way out," but I can't imagine anything more difficult.  I am just so blessed.  I am also grateful that the birth mothers of both of my children have gone on to lead happy lives, have been married in the temple, and have children of their own now.

Being a mom is the greatest!  It brings me a sense of pride, happiness, joy, and peace I could have never imagined.  As I look at my children, I wonder what they will become and how I can help.  I hope that I am teaching them all that they need to know to become good people.  I want them to be happy and lead productive lives.  Most of all, I want them to love the Savior as I do.  I want them to know that the gospel of Jesus Christ is true and that if they follow its teachings, they will know true happiness.

This morning, I woke up Courtnie for school and told her to get in the shower.  When I went back into my room, she was "hiding" under my covers.  I pretended she wasn't there and squished her.  We giggled for a bit, and then just laid there, snuggling, for a few minutes.  It felt so good to just be quiet and "listen" to each other.  I hope she knows how much I love her and am so grateful for her.  Sometimes words just aren't enough.

I'm so grateful for a Father in Heaven who knows my needs.  He knew that I'd need these two very special children in my life...especially at this time.  When things are tough and I just don't know if it's all worth it, I think of my children and can't wait for tomorrow.

Sunday, May 8, 2011

The Atonement Covers All Pain


As I listened to General Conference last month, this talk by Kent F. Richards of the Seventy had the most impact on me.  I cried through the entire talk. I'm so grateful for a Heavenly Father who has given us church leaders who know EXACTLY what we need to hear.  I honestly felt like this talk was written just for me, although I know that many others needed needed it as well.  It has given me a new perspective, and I appreciate it so much:

As a surgeon, I found that a significant portion of my professional time was taken up with the subject of pain. Of necessity I surgically inflicted it almost daily—and much of my effort was then spent trying to control and alleviate pain.

I have pondered about the purpose of pain. None of us is immune from experiencing pain. I have seen people cope with it very differently. Some turn away from God in anger, and others allow their suffering to bring them closer to God.

Like you, I have experienced pain myself. Pain is a gauge of the healing process. It often teaches us patience. Perhaps that is why we use the term patient in referring to the sick.

Elder Orson F. Whitney wrote: “No pain that we suffer, no trial that we experience is wasted. It ministers to our education, to the development of such qualities as patience, faith, fortitude, and humility. … It is through sorrow and suffering, toil and tribulation, that we gain the education that we come here to acquire.”

Similarly, Elder Robert D. Hales has said:

“Pain brings you to a humility that allows you to ponder. It is an experience I am grateful to have endured. …

“I learned that the physical pain and the healing of the body after major surgery are remarkably similar to the spiritual pain and the healing of the soul in the process of repentance.”

Much of our suffering is not necessarily our fault. Unexpected events, contradicting or disappointing circumstances, interrupting illness, and even death surround us and penetrate our mortal experience.  Additionally, we may suffer afflictions because of the actions of others.  Lehi noted that Jacob had “suffered … much sorrow, because of the rudeness of [his] brethren.”  Opposition is part of Heavenly Father’s plan of happiness. We all encounter enough to bring us to an awareness of our Father’s love and of our need for the Savior’s help.

The Savior is not a silent observer. He Himself knows personally and infinitely the pain we face.

“He suffereth the pains of all men, yea, the pains of every living creature, both men, women, and children.”

“Let us therefore come boldly unto the throne of grace, that we may obtain mercy, and find grace to help in time of need.”

Sometimes in the depth of pain, we are tempted to ask, “Is there no balm in Gilead; is there no physician there?”  I testify the answer is yes, there is a physician. The Atonement of Jesus Christ covers all these conditions and purposes of mortality.

There is another kind of pain for which we are responsible. Spiritual pain lies deep within our souls and can feel unquenchable, even as being racked with an“inexpressible horror,” as Alma described.  It comes from our sinful actions and lack of repentance. For this pain too there is a cure that is universal and absolute. It is from the Father, through the Son, and it is for each of us who is willing to do all that is necessary to repent. Christ said, “Will ye not now return unto me … and be converted, that I may heal you?” 

Christ Himself taught:

“And my Father sent me that I might be lifted up upon the cross; and after that I had been lifted up upon the cross, that I might draw all men unto me. …

“Therefore, according to the power of the Father I will draw all men unto me.”

Perhaps His most significant work is in the ongoing labor with each of us individually to lift, to bless, to strengthen, to sustain, to guide, and to forgive us.

As Nephi saw in vision, much of Christ’s mortal ministry was devoted to blessing and healing the sick with all kinds of maladies—physical, emotional, and spiritual. “And I beheld multitudes of people who were sick, and who were afflicted with all manner of diseases. … And they were healed by the power of the Lamb of God.”

Alma also prophesied that “he shall go forth, suffering pains and afflictions and temptations of every kind; and … he will take upon him the pains and the sicknesses of his people. …

“That his bowels may be filled with mercy, … that he may know according to the flesh how to succor his people according to their infirmities.”

Late one night lying in a hospital bed, this time as a patient and not as a physician, I read those verses over and over again. I pondered: “How is it done? For whom? What is required to qualify? Is it like forgiveness of sin? Do we have to earn His love and help?” As I pondered, I came to understand that during His mortal life Christ chose to experience pains and afflictions in order to understand us. Perhaps we also need to experience the depths of mortality in order to understand Him and our eternal purposes.

President Henry B. Eyring taught: “It will comfort us when we must wait in distress for the Savior’s promised relief that He knows, from experience, how to heal and help us. … And faith in that power will give us patience as we pray and work and wait for help. He could have known how to succor us simply by revelation, but He chose to learn by His own personal experience.”

I felt the encircling arms of His love that night.  Tears watered my pillow in gratitude. Later, as I was reading in Matthew about Christ’s mortal ministry, I made another discovery: “When the even was come, they brought unto him many … and he … healed all that were sick.” He healed all that came to Him. None were turned away.

As Elder Dallin H. Oaks has taught: “Healing blessings come in many ways, each suited to our individual needs, as known to Him who loves us best. Sometimes a ‘healing’ cures our illness or lifts our burden. But sometimes we are ‘healed’ by being given strength or understanding or patience to bear the burdens placed upon us.”  All that will come may be “clasped in the arms of Jesus.”  All souls can be healed by His power. All pain can be soothed. In Him, we can “find rest unto [our] souls.”  Our mortal circumstances may not immediately change, but our pain, worry, suffering, and fear can be swallowed up in His peace and healing balm.

I have noted that children are often more naturally accepting of pain and suffering. They quietly endure with humility and meekness. I have felt a beautiful, sweet spirit surrounding these little ones.

Thirteen-year-old Sherrie underwent a 14-hour operation for a tumor on her spinal cord. As she regained consciousness in the intensive care unit, she said: “Daddy, Aunt Cheryl is here, … and … Grandpa Norman … and Grandma Brown … are here. And Daddy, who is that standing beside you? … He looks like you, only taller. … He says he’s your brother, Jimmy.” Her uncle Jimmy had died at age 13 of cystic fibrosis.

“For nearly an hour, Sherrie … described her visitors, all deceased family members. Exhausted, she then fell asleep.”

Later she told her father, “Daddy, all of the children here in the intensive care unit have angels helping them.”
To all of us the Savior said:

“Behold, ye are little children and ye cannot bear all things now; ye must grow in grace and in the knowledge of the truth.

“Fear not, little children, for you are mine. …

“Wherefore, I am in your midst, and I am the good shepherd.”

Our great personal challenge in mortality is to become “a saint through the atonement of Christ.”  The pain you and I experience may be where this process is most measured. In extremity, we can become as children in our hearts, humble ourselves, and “pray and work and wait” patiently for the healing of our bodies and our souls. As Job, after being refined through our trials, we “shall come forth as gold.”

I bear testimony that He is our Redeemer, our Friend, our Advocate, the Great Physician, the Great Healer. In Him we can find peace and solace in and from our pain and our sins if we will but come unto Him with humble hearts. His “grace is sufficient.” In the name of Jesus Christ, amen.

Tuesday, May 3, 2011

This Blog Post is Brought to You By the Letters "M," "L," and the Number "14"


I grew up on Sesame Street.  My mom will tell you that it's the reason I skipped kindergarten.  My favorite character was Grover.  My favorite book was "The Monster At the End of This Book."  Nothing  ever seemed to go right for him...ever.  His superhero alter-ego always ended up crashing into walls, he couldn't seem to remember anything, and he was the waiter at the restaurant where the guy always had a fly in his soup.

Lately, I've been feeling a little bit like Grover.  A little picked on, a little left out, and nothing seems to go right for me.  My hep B viral count is still too high, so the transplant has been postponed yet again.  (For those of you keeping score at home, this is postponement number four.)  It's going down, but still is detectable, so my med dosage has been doubled again, and I'll have another blood draw on May 10.  Oh, I'm tired of hoping and praying.  I'm ready to do some happy dancing!

So, the new date is June 14.  A pretty significant date in our family.  My sister who is donating the kidney to me gave me something else on June 14, something that means so much to me. 

As I have thought about the number 14, a few other fun facts struck me:
1.  When Michelle told me about June 14, I counted how many dialysis treatments I had left.  14!
2.  In December, I purchased a pack of 50 Tegaderm patches (they cover my dialysis catheter site and make it waterproof.)  I counted how many patches I have left.  I have exactly enough to last the 14 treatments!
3.  Courtnie's birthday is June 14.  (It's also her favorite number!)
4.  Ian is 14.

I'm not really a "sign seeker," but I feel pretty excited about all of these little coincidences.  Once again, trying not to get my hopes up too high, but feeling good.

By the way--if you can figure out what the title of this post is, you win a prize! :)